Brett’s Bands for SUDEP Awareness annual 5K. This run/walk is hosted in the fall around Brett’s birthday. The event takes place at English landing Park in Parkville, Missouri. Registration allows for both in-person and virtual participation and swag bag options.
The event raises awareness for SUDEP and proceeds benefit educational efforts
Brett’s Bands educational efforts are extending into the community primary care offices through literature. Epilepsy brochures with SUDEP education for patients and caregivers are available upon request.
What’s next for Brett’s Bands?? Reaching state leadership! SUDEP is a sensitive subject for doctor’s to discuss, but it is their duty to provide education to their patients! Written literature MUST be given to each patient at diagnosis. Additionally, SUDEP risk should be re-evaluated annually. Uncontrolled seizure activity must be aggressively managed.