Learning about SUDEP is scary.
The thought of a loved one being stolen so suddenly and with no warning IS a scary idea.
Researchers are still learning about SUDEP. The big questions we all have are, “CAN SUDEP be prevented?? Can I save my loved one from this fate? Can I protect them?”
The answer is both YES and NO. Similar to SIDS, there are things that we can do to help lower the risk. This doesn’t mean that we are guaranteed not to lose our loved one to SUDEP. But…
We have a right to know that SUDEP exists.
We have a right to know what our loved one’s risk is.
We have a right to provide our loved one with tools to help prevent SUDEP!
Brett’s Bands does not offer medical advice or make specific recommendations to treat your loved one. Speak to your epilepsy specialist for individual recommendations.
There are many options available to monitor for seizures. While this list is not all inclusive, we hope this offers some help to guide you on your journey.
wearables and phone apps
EpiMonitor is the newest model seizure alert wearable released by Empatica. It is the only FDA-cleared wrist-worn wearable in epilepsy. It detects possible convulsive seizures and instantly alerts caregivers. Created to offer round-the-clock safety and comfort, to help people with epilepsy get help when they need it most.
Orders in the US do require a prescription. CLICK HERE to learn more about this requirement. There is a 30-day free return. Have your doctor fill out the PREDETERMINATION FORM for potential insurance reimbursement.
Seizure Detection for the iPhone & Apple Watch
Help When You Need It, For Those With Epilepsy & Other Seizure Disorders
SeizAlarm is a user-friendly seizure detection app which allows those with epilepsy and other seizure disorders to alert emergency contacts automatically when seizure-like motion or a concerning heart rate is detected.
There is a FREE 2 week trial. Monthly or annual service options available. No prescription required as this technology uses your current phone and is not considered a medical device.
Don’t own an Apple Watch? This app also works with just the iPhone! While using the Apple Watch is considered more accurate and convenient, not everyone has one! In this case, just firmly attach your iPhone to your body. They recommend using an exercise arm band.
Have you ever heard, “there’s an app for that?” Check out your App store for what’s recommended on the market!
This is a moving target. There are Apps to log seizure activity, medication reminders, and even seizure First Aid.
Seizure Alert/ Seizure Response Dogs
Specially trained dogs can be used to alert caregivers to a seizure. Click here to learn more about the differences between seizure alert and seizure response dogs. The following organizations are just a few out there who can help connect service dogs to their human.
